Living with irritable bowel syndrome (IBS) can often feel like juggling multiple invisible challenges that many people don’t see. From unpredictable symptoms to constant planning, those living with IBS know that managing it goes far beyond just what’s on their plate. While others may never know what happens behind the scenes, there are hidden struggles—’skeletons in the cupboard’—that many people with IBS face daily. Before we dive into these hidden challenges, if you’re looking for a way to manage your IBS more effectively, you can download my free IBS workbook here.
Here are some of those hidden challenges:
1. Avoiding social events
It might look like you’re just a bit of a homebody, but sometimes the fear of a flare-up leads to quietly turning down invitations. Missing out on social events isn’t about being anti-social; it’s about avoiding the anxiety of potentially dealing with symptoms in public.
2. Hiding discomfort
You may look calm and composed on the outside, but inside, your gut is doing somersaults. Many people with IBS become experts at hiding their discomfort, pretending everything’s fine during a flare-up when it’s anything but.
3. Fear of eating out
Going out for a meal can be nerve-wracking. The unpredictability of food triggers means every dish is a gamble, leaving you worried about whether it’ll cause discomfort later. What should be a fun experience becomes a source of stress.
4. Bathroom anxiety
Spending too much time in the bathroom or worrying about when you’ll need it next is a common concern. The embarrassment of explaining your prolonged absences can lead to avoidance of social situations altogether.
5. The bathroom check
Ever found yourself scanning the room for the nearest bathroom the moment you enter a place? It’s second nature for many with IBS, just in case symptoms strike unexpectedly.
6. Travel anxiety
While travel can be exciting, it often brings anxiety for those with IBS. Limited access to comfortable restrooms, unpredictable schedules, and new foods all add up to a stressful experience, making spontaneous trips feel impossible.
7. Pretending to like certain foods
Sometimes, it’s easier to go along with what everyone else is eating than to explain why you’re avoiding certain dishes. Whether it’s at family dinners or work events, it’s common to pretend to enjoy foods just to avoid drawing attention.
8. Secretly taking meds
Managing symptoms often means having a stash of over-the-counter medications at the ready. Discreetly taking them on the go or at work is a routine that helps manage flare-ups without others noticing.
9. Feeling self-conscious about bloating
The physical symptoms of IBS, like bloating, can feel obvious, even if they’re not. Trying to hide it by wearing loose clothes or keeping your arms crossed might seem small, but it’s something many people with IBS think about constantly.
10. Navigating work with IBS
Managing IBS symptoms at work or in meetings can feel like an Olympic feat. From carefully planning bathroom breaks to silently coping with discomfort, staying professional while managing symptoms isn’t easy.
11. Stockpiling ‘safe foods’
To avoid flare-ups, it’s not unusual to keep a stockpile of “safe” foods at home or the office. It offers a sense of security, knowing there’s something you can eat without worrying about triggering symptoms.
12. Skipping meals
Sometimes the safest way to avoid a flare-up before an important event is to skip meals entirely. While others are enjoying a snack or meal, you might quietly pass to ensure your stomach stays calm for the day.
13. Avoiding dating
The fear of symptom embarrassment can make dating daunting. The anxiety of potentially having to explain or manage IBS symptoms around a new person often leads to delaying or avoiding relationships altogether.
14. Guilt over ‘healthy’ foods
Feeling guilty for not being able to eat the same ‘healthy’ foods as others is another hidden struggle. Watching others indulge in salads or fibre-packed meals, while knowing they could cause a flare for you, can be isolating.
A shared reality
While these IBS challenges may feel isolating, they are incredibly common for those managing this condition. Many people go through similar experiences, quietly navigating life with IBS while others remain unaware of the constant planning and discomfort involved.
Remember, you’re not alone in these struggles, and seeking support, whether through dietary changes, stress management, or professional help, can make a world of difference. Managing IBS isn’t just about controlling symptoms—it’s about reclaiming your life.
Very helpful information,thank you
I’m so happy you found it helpful x